Sue Brown
Present appointment:
Clinical Nurse Specialist in Connective Tissue Diseases
Royal National Hospital for Rheumatic Diseases NHS Foundation Trust
Upper Borough Walls
Bath BA1 1RL
Qualifications:
V300 Prescribing Practice 2011
GCP and Statutory Instrument update 2010
MSc in Healthcare Practice 2003ENB 998 Teaching &Assessing in Clinical Practice 1996
Registered General Nurse 1994
State Enrolled Nurse 1980
Previous and other appointments:
March 2002 – Present (Full time)
Royal National Hospital for Rheumatic Diseases NHS Trust, Bath
Clinical Nurse Specialist in Connective Tissue Diseases (CTD) Band 8b
Research experience:
I have worked in research at the RNHRD since 1996. Initially involved in an arc funded study as a research nurse, in 1997 I was appointed to run a clinical trial in anti-TNF studies in rheumatology. This post also included managing two other clinical trials. My appointment in 1999 as Clinical Nurse Specialist in Connective Tissue Diseases has included research as a part of the main purpose of the post. Research studies I have co-ordinated since then include:
1999 Aspirin Low Intensity Anticoagulation Phospholipid Antibody Study
2001 Observational Study in Early Diffuse Systemic Sclerosis
2003 Qualitative Primary Research study evaluating the patient’s experience of attending a lupus or scleroderma education programme – primary researcher2008 Qualitative Research project (AR-UK Educational Project Grant) investigating information needs of newly diagnosed lupus patients – principal investigator2009 Digital Outcomes Registry (DUO)
2010 Supervising nursing input to research studies: current studies include AOMIC, DUO, UKPSSR, Cardiovascular outcomes in Sjögren’s syndrome, GRACE, PEST, LOPAS
I am line manager for a team of clinical research nurses in CTD, PsA and RA
Professional Memberships
Royal College of Nursing
British Health Professionals in Rheumatology
RCN Rheumatology Forum
Other key rheumatology positions held
- Chair of Lupus UK Nurses Network Group
- Chair of Scleroderma UK and Ireland Multi-Disciplinary Network Group
- Convenor for BHPR Connective Tissue Diseases Special Interest Group
- Reviewer Musculoskeletal Care
- RCN Rheumatology Forum CTD Link Nurse South West
- Medical Adviser to Raynaud’s and Scleroderma Association
Working Party member in NICE scoping workshop in Belimumab in SLE (2010), RCN biologics guidelines (2009), map of medicine in raynaud’s (2008), ARNA CTD standards of care (2007), RCN telephone advice line guidelines (2006)
Relevant publications:
Brown SJ (2010) Nurse Management of Digital Ulcers Related to Systemic Sclerosis Nursing Standard Tissue Viability Supplement 24: 32; 53-62
Brown SJ, James J, Pauling JP, Shipley JA, Korendowych E, McHugh NJ (2010) Vacuum Assisted Closure Therapy: A Novel Treatment for refractory digital ulceration in systemic scelrosis Clinical and Experimental Rheumatology 1st Systemic Sclerosis World Congress 92
Brown SJ, Derham S, Korendowych E, Russell J, O’Sullivan B & Elliott B (2008) The Bath Lupus and Scleroderma Education/Self Management Programmes: 3 year results Rheumatology Supplement 2 47:ii137-8
Waldron N, Brown SJ (2007) A Qualitative Study Exploring the Impact of Uncertianty for Lupus Patient Between Onset of Symptoms and Diagnosis Rheumatology Supplement 46:1;i56(99)
Brown SJ, Johnson A, Russell J, Elliott B, O’Sullivan B (2006) The Bath Lupus and Scleroderma Education/Self Management Programmes: 18 month results 02-05 May Rheumatology Supplement 145:i173
Brown SJ, McCabe CS, Hewlett S, McDowell JA, Cushnaghan J, Breslin AM, Stafford S, and Carmichael CR. (2006) Rheumatology Telephone Helplines: Patient and Health Professional Requirements Musculoskeletal Care 4: 1; 24-37
Solanki K, Chan M, Brown SJ, Waldron N, Owen P & Carmichael C (2005) Performance of Medsger Severity Score in Serological Subsets of Scleroderma Rheumatology Supplement 44: Supplement 1; i131 (324)
Brown SJ, Johnson A, Washbrook C, Davies J & Evans E (2005) The Bath Lupus Group Education Programmes: An Individualised Approach Lupus 14: 3; 245 (74) (Special Issue 6th European Lupus Meeting)
Book Publications
- Oxford Handbook of Musculoskeletal Nursing 2009 Oxford Medical Publications, ISBN 978-0-19-923833-0
- Author of chapters on Systemic Lupus Erythematosus and Sjögren’s Syndrome
- Advisor for Fertility and Conception chapter
- Newly Diagnosed with Lupus, a patient information booklet and DVD (due for publication Autumn 2011)